Members
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| Members | Join Site |
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Ally Member Female |
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Claire Member Female |
About Me
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Debbie Member Female |
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HDSON Member Male |
About Me
My son was diagnosed with hd at 3 months old we did dilations and daily wash outs had laproscopic transanal pullthrough at 5 months old but ended up with looped ilieostomy at 5 months old now ilieostomy been reversed at 17months and having bm 15-20 times a day with burnt perineum which is persistently red sore and bleeding
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Kieran Member Female 41 years old |
About Me
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Sam tomlin Member Female |
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Stephanie Member Female 33 years old |
About Me
My name is Stephanie. At 6 months of age I was diagnosed with Total Colonic Hirshcsprungs. To correct, I had the Martin-Duhamel revision. Since then I have endured a few complications to the disease, however, for the most part I would say I'm pretty lucky. My day to day struggle is predominately due to dehydration and the inability to hold on to weight. However, I try not to let HD define me. I love to craft, cook, bake, nature, and sharing time with friends and family. Last year I even took up horseback riding! In about 6 months time I should be finishing up my MS degree in Child Life! |
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Trev Member Male |
About Me
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hdawarness Site Owner |
About Me
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katie Member Female |
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